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Update governance
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rajxir committed Oct 3, 2023
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Expand Up @@ -39,8 +39,10 @@ To bridge these gaps and to help the 1+MG community navigate the heterogeneous e
* Policy for the data inclusion in 1+MG, the data access procedures and requirements for data use; for research use only – data governance for other data use to follow
* [Transparency and consent guidance](https://zenodo.org/record/8279851) <span class="badge badge-warning">Required<i class="fa-sharp fa-regular fa-star"></i></span>
* Minimum standards and recommendations to be considered for information sheets and for obtaining consent for secondary use of data
* Data Protection / ELSI by Design and Default (DPbDD recommendations):
* [Data Protection / ELSI by Design and Default (DPbDD recommendations):](https://zenodo.org/record/8399424)
* Recommendations for the information management and IT infrastructure features to comply with legal requirements and to implement the data governance
* [Data Protection by Design and Default: Full list of principles](https://zenodo.org/record/8399563)
* A presentation that lists all DPbDD principles by category
* GDPR requirements as influencing factors for the legal framework of 1+MG
* Discussion and recommendations on the legal framework for the implementation of 1+MG as a genomic infrastructure with respect to the legal instrument for establishment and the legally compliant operations; document shared with the 1+MG Group of Signatory Countries
* Legal instruments for the sustainable implementation of the 1+MG genomic infrastructure
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