diff --git a/pages/data-governance.md b/pages/data-governance.md index 645ce3b..8a977ab 100644 --- a/pages/data-governance.md +++ b/pages/data-governance.md @@ -39,8 +39,10 @@ To bridge these gaps and to help the 1+MG community navigate the heterogeneous e * Policy for the data inclusion in 1+MG, the data access procedures and requirements for data use; for research use only – data governance for other data use to follow * [Transparency and consent guidance](https://zenodo.org/record/8279851) Required * Minimum standards and recommendations to be considered for information sheets and for obtaining consent for secondary use of data -* Data Protection / ELSI by Design and Default (DPbDD recommendations): +* [Data Protection / ELSI by Design and Default (DPbDD recommendations):](https://zenodo.org/record/8399424) * Recommendations for the information management and IT infrastructure features to comply with legal requirements and to implement the data governance +* [Data Protection by Design and Default: Full list of principles](https://zenodo.org/record/8399563) + * A presentation that lists all DPbDD principles by category * GDPR requirements as influencing factors for the legal framework of 1+MG * Discussion and recommendations on the legal framework for the implementation of 1+MG as a genomic infrastructure with respect to the legal instrument for establishment and the legally compliant operations; document shared with the 1+MG Group of Signatory Countries * Legal instruments for the sustainable implementation of the 1+MG genomic infrastructure