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URI to contain actual regex as pattern to rely on existing FE functio… #60

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Sep 23, 2024
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URI to contain actual regex as pattern to rely on existing FE functio… #60

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4b7894c
URI to contain actual regex as pattern to rely on existing FE functio…
loki-sinclair-hdruk Sep 23, 2024
2d3ef64
updates to do things properly
loki-sinclair-hdruk Sep 23, 2024
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14 changes: 8 additions & 6 deletions docs/GWDM/1.0.form.json
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Expand Up @@ -309,9 +309,9 @@
},
{
"required": false,
"title": "Follow-up",
"description": "If known, what is the typical time span that a patient appears in the dataset (follow up period). In a prospective cohort study, after baseline information is collected, participants are followed \u201clongitudinally\u201d i.e. new information is collected about them for a period of time afterward. This is known as the \u201cfollow up period\u201d. What is the typical time span of follow up, e.g. 1 year, 5 years? If there are multiple cohorts in the dataset with varying follow up periods, please provide the longest follow up period.",
"guidance": "If known, please indicate the typical time span that a patient appears in the dataset (follow up period).\\n-**0 - 6 MONTHS**: Data typically available for a patient over a 0-6 month period.\\n-**6 - 12 MONTHS**: Data typically available for a patient over a 6-12 month period.\\n-**1 - 10 YEARS**: Data typically available for a patient over a 1-10 year period.\\n-**> 10 YEARS**: Data typically available for a patient for over a 10 year period.\\n-**CONTINUOUS**: Data for patients is being regularly added to and updated.\\n-**UNKNOWN**: Timespan is Unknown.\\n-**OTHER**: Data available for a patient over another time period.",
"title": "Followup",
"description": "If known, what is the typical time span that a patient appears in the dataset (follow up period)",
"guidance": "",
"examples": null,
"is_list": false,
"is_optional": true,
Expand Down Expand Up @@ -550,7 +550,8 @@
"description": "Please provide a brief description of the data access services that are available including: environment that is currently available to researchers; additional consultancy and services; any indication of costs associated. If no environment is currently available, please indicate the current plans and timelines when and how data will be made available to researchers Note: This value will be used as default access environment for all datasets submitted by the organisation. However, there will be the opportunity to overwrite this value for each dataset.",
"guidance": "Please provide a brief description of the data access services that are available including:\\n- environment that is currently available to researchers\\n- additional consultancy and services\\n- any indication of costs associated\\n\\n If no environment is currently available, please indicate the current plans and timelines when and how data will be made available to researchers.\\n **Note**: This value will be used as default access environment for all datasets submitted by the organisation. However, there will be the opportunity to overwrite this value for each dataset.",
"examples": [
"https://cnfl.extge.co.uk/display/GERE/Research+Environment+User+Guide"
"https://re-docs.genomicsengland.co.uk/tutorials/",
"https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/"
],
"is_list": false,
"is_optional": true,
Expand Down Expand Up @@ -622,7 +623,7 @@
"required": true,
"title": "Data Controller",
"description": "Data Controller means a person/entity who (either alone or jointly or in common with other persons/entities) determines the purposes for which and the way any Data Subject data, specifically personal data or are to be processed.",
"guidance": "- Data Controller means a person/entity who (either alone or jointly or in common with other persons/entities) determines the purposes for which and the way any Data Subject data, specifically personal data or are to be processed.\\n- Notes: For most organisations this will be the same as the Data Custodian of the dataset. If this is not the case, please indicate that there is a different controller.\\n- If there is a different controller please complete the Data Processor attribute to indicate if the Data Custodian is a Processor rather than the Data Controller.\\n- In some cases, there may be multiple Data Controllers i.e. GP data. If this is the case, please indicate the fact in a free-text field and describe the data sharing arrangement or a link to it, so that this can be understood by research users.\\n- Example: NHS England'",
"guidance": "- Data Controller means a person/entity who (either alone or jointly or in common with other persons/entities) determines the purposes for which and the way any Data Subject data, specifically personal data or are to be processed.\\n- Notes: For most organisations this will be the same as the Data Custodian of the dataset. If this is not the case, please indicate that there is a different controller.\\n- If there is a different controller please complete the Data Processor attribute to indicate if the Data Custodian is a Processor rather than the Data Controller.\\n- In some cases, there may be multiple Data Controllers i.e. GP data. If this is the case, please indicate the fact in a free-text field and describe the data sharing arrangement or a link to it, so that this can be understood by research users.\\n- Example: NHS England",
"examples": [
"NHS England"
],
Expand Down Expand Up @@ -956,5 +957,6 @@
},
"location": "observations.measuredProperty"
}
]
],
"url_regex": "^\\s*((https?:\\/\\/)*([a-zA-Z0-9-]+\\.?)+[a-zA-Z]{2,}(:\\d+)?(\\/[^\\s]*)?(\n)?)+$"
}
17 changes: 9 additions & 8 deletions docs/GWDM/1.0.md
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Expand Up @@ -296,11 +296,11 @@ Please indicate if the dataset is representative of the patient pathway and any

### followup

If known, what is the typical time span that a patient appears in the dataset (follow up period). In a prospective cohort study, after baseline information is collected, participants are followed “longitudinally” i.e. new information is collected about them for a period of time afterward. This is known as the “follow up period”. What is the typical time span of follow up, e.g. 1 year, 5 years? If there are multiple cohorts in the dataset with varying follow up periods, please provide the longest follow up period.
If known, what is the typical time span that a patient appears in the dataset (follow up period)

| title | guidance | is_list | required | type |
|:----------|:---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:---------------------------------------------------------------------------------------------------------------------|
| Follow-up | If known, please indicate the typical time span that a patient appears in the dataset (follow up period).<br>-**0 - 6 MONTHS**: Data typically available for a patient over a 0-6 month period.<br>-**6 - 12 MONTHS**: Data typically available for a patient over a 6-12 month period.<br>-**1 - 10 YEARS**: Data typically available for a patient over a 1-10 year period.<br>-**> 10 YEARS**: Data typically available for a patient for over a 10 year period.<br>-**CONTINUOUS**: Data for patients is being regularly added to and updated.<br>-**UNKNOWN**: Timespan is Unknown.<br>-**OTHER**: Data available for a patient over another time period. | False | False | ["Followup['0 - 6 MONTHS','6 - 12 MONTHS','1 - 10 YEARS','> 10 YEARS','UNKNOWN','CONTINUOUS','OTHER',null]", 'null'] |
| title | guidance | is_list | required | type |
|:---------|:-----------|:----------|:-----------|:---------------------------------------------------------------------------------------------------------------------|
| Followup | | False | False | ["Followup['0 - 6 MONTHS','6 - 12 MONTHS','1 - 10 YEARS','> 10 YEARS','UNKNOWN','CONTINUOUS','OTHER',null]", 'null'] |



Expand Down Expand Up @@ -516,7 +516,8 @@ Please provide a brief description of the data access services that are availabl

Examples:

* https://cnfl.extge.co.uk/display/GERE/Research+Environment+User+Guide
* https://re-docs.genomicsengland.co.uk/tutorials/
* https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/


#### accessRequestCost
Expand Down Expand Up @@ -556,9 +557,9 @@ Please use country code from ISO 3166-1 country codes and the associated ISO 316

Data Controller means a person/entity who (either alone or jointly or in common with other persons/entities) determines the purposes for which and the way any Data Subject data, specifically personal data or are to be processed.

| title | guidance | is_list | required | type |
|:----------------|:--------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:-------------------------------------------------------------------------------------------------------------------|
| Data Controller | - Data Controller means a person/entity who (either alone or jointly or in common with other persons/entities) determines the purposes for which and the way any Data Subject data, specifically personal data or are to be processed.<br>- Notes: For most organisations this will be the same as the Data Custodian of the dataset. If this is not the case, please indicate that there is a different controller.<br>- If there is a different controller please complete the Data Processor attribute to indicate if the Data Custodian is a Processor rather than the Data Controller.<br>- In some cases, there may be multiple Data Controllers i.e. GP data. If this is the case, please indicate the fact in a free-text field and describe the data sharing arrangement or a link to it, so that this can be understood by research users.<br>- Example: NHS England' | False | True | ["LongDescription[{'anyOf': [{'maxLength': 50000, 'minLength': 2, 'type': 'string'}, {'type': 'null'}]}]", 'null'] |
| title | guidance | is_list | required | type |
|:----------------|:-------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:-------------------------------------------------------------------------------------------------------------------|
| Data Controller | - Data Controller means a person/entity who (either alone or jointly or in common with other persons/entities) determines the purposes for which and the way any Data Subject data, specifically personal data or are to be processed.<br>- Notes: For most organisations this will be the same as the Data Custodian of the dataset. If this is not the case, please indicate that there is a different controller.<br>- If there is a different controller please complete the Data Processor attribute to indicate if the Data Custodian is a Processor rather than the Data Controller.<br>- In some cases, there may be multiple Data Controllers i.e. GP data. If this is the case, please indicate the fact in a free-text field and describe the data sharing arrangement or a link to it, so that this can be understood by research users.<br>- Example: NHS England | False | True | ["LongDescription[{'anyOf': [{'maxLength': 50000, 'minLength': 2, 'type': 'string'}, {'type': 'null'}]}]", 'null'] |

Examples:

Expand Down
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