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jessicarod7 committed Dec 26, 2024
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4 changes: 2 additions & 2 deletions _posts/2024-10-08-trapdoor.md
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<figure>
<picture>
<source srcset="/assets/img/2024/10/PXL_20231206_190049619.avif">
<source srcset="/assets/img/2024/10/PXL_20231206_190049619.webp">
<source srcset="/assets/img/2024/10/PXL_20231206_190049619.avif" />
<source srcset="/assets/img/2024/10/PXL_20231206_190049619.webp" />
<img src="/assets/img/2024/10/PXL_20231206_190049619.jpg" alt="A modular video wall with exposed controllers" />
</picture>
<figcaption>Jessica Rodriguez, 2023</figcaption>
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84 changes: 84 additions & 0 deletions _posts/2024-12-26-estradiol-injections-insurance.md
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---
title: "Getting estradiol injections covered by insurance in Canada 🏳️‍⚧️💉🇨🇦"
date: 2024-12-26
excerpt: "Insurance coverage? For my injections? It's more likely than you think!"
redirect_from:
- /blog/2024-12-estradiol-injections-insurance
---


For a few months, I've been getting my HRT via injections, specifically estradiol valerate. It's another option, like
pills, patches, gels, and [implants](https://www.youtube.com/watch?v=9O7kNmpT_TA), which some people find better suits
their situation, myself included. However, getting insurance coverage can be challenging, and I've heard many people,
online and in-person, say it's not possible.

Today, I'm dispelling that rumour. For the last 3 months, I've gotten my prescriptions in Ontario consistently covered
by Manulife. Here's my most recent claim at the time of writing:

<picture>
<source srcset="/assets/img/2024/12/insurance-claim-estradiol-covered.avif" />
<source srcset="/assets/img/2024/12/insurance-claim-estradiol-covered.webp" />
<img src="/assets/img/2024/12/insurance-claim-estradiol-covered.png" alt="Manulife insurance statement for November 28, 2024, showing 100% coverage for estradiol valerate, at $87.99" />
</picture>
<br>
I'm sharing what I've learned, in the hopes that others will find success.

## Background

So, first we need to understand why it's so tricky to get estradiol injections in Canada.

The only form that's approved is estradiol valerate. This was previously imported as brand-name Delestrogen
([DIN 00029238](https://health-products.canada.ca/dpd-bdpp/info?lang=eng&code=517)) by the now-defunct Theramed Corporation
until 2008, and a generic was available from Pharmascience until 2016 ([DIN 00741930](https://health-products.canada.ca/dpd-bdpp/info?lang=eng&code=9615)).
Since then, there's no way to purchase the commercially-manufactured version, so it has to be compounded by a pharmacy.

And this is where the problem arises. Compounded drugs don't have their own DIN, so when you file an insurance claim,
the company doesn't recognize the prescription and denies it. Some compounded drugs instead have a _pseudo-DIN_, which
isn't registered with Health Canada, but the insurance companies recognize when processing claims. Unfortunately,
estradiol valerate doesn't have a pseudo-DIN. So, the challenge lies in translating the compounded drug to something
they can recognize.

## What to do

Before doing anything else, check if your provincial or territorial insurance already covers injections. It's unlikely,
but will save you a lot of stress if it is. For example, estradiol pills are covered under the [Ontario Drug Benefit](https://www.ontario.ca/page/get-coverage-prescription-drugs),
but not injections, so I had to work with my group plan.

**Your best chance of success is by filing a standard claim with a Drug Insurance Number (DIN).** I talked to Manulife's
live chat[^1], and they recommended uploading the receipt for compounded drugs, but these got rejected half of the time.
Still, it might be worth contacting the company and trying what they suggest. Don't worry about resubmitting; I had to
try 4 times with one receipt and never ran into any issues.

Here's how to find the right DIN:

1. Check the _DIN provided on your prescription receipt_ ([here's an example](https://www.rbcinsurance.com/group-benefits/_assets-custom/popups/understanding-prescription-drug-receipts.html)).
If it's something like all zeroes or repeating digits, it's probably a placeholder and won't work. But otherwise, try using this first.
2. Ask your pharmacy for the _pseudo-DIN of the base "active" ingredient, estradiol_. Your insurance may recognize this number in the claim.
3. Finally, _search for "\<INSURANCE COMPANY\> pseudo-DIN" and look for a chart of pseudo-DINs_. Then, look for estradiol in the list.

Once you have the DIN, plug this into the claim details. When it asks for the quantity, use something that makes sense.
Typically, estradiol valerate is compounded in Canada at a concentration of 10 mg/mL. So if you have a 5 mL vial, you
could put the quantity as "5 mL" or "50 mg" (concentration times volume). If you have a different concentration, you
should convert to milligrams and use that value, to make sure you receive the correct coverage.

## What worked for me

My pharmacy provided me with pseudo-DIN `00986496` for the base ingredient. It also appears in an [Express Scripts chart](https://www.express-scripts.ca/sites/default/files/2020-12/PSEUDO%20DIN%20COMPOUND%20LIST_v2.0_EN.pdf)
under the name ESTRADIOL USP MICRONIZED. Using this, Manulife approved the claim and reimbursed me! Some findings:

- I've always filed my claims in mL. I'm not sure what results look like with mg.
- I originally had my estradiol compounded at my regular pharmacy. I got 2 mL for \$84.14 (or \$42.07/mL), plus an
\$11.99 dispensing fee. Manulife inconsistently reimbursed me for the full amount, but it was always a struggle.
- When I switched to my current method, they only covered \$59.95. Subtracting the dispensing fee, this suggests
_Manulife will cover at a rate of \$23.98/mL_.
- After this, I switched to [Pace Pharmacy](https://pacepharmacy.com/). They compound 5 mL vials for \$38, or \$7.60/mL.
Even with the $11.99 dispensing fee, Manulife can now cover the full amount.

## It's possible!

Hopefully this will help you find success, or at least increase your options. If you found this helpful, or know someone
that this could assist, share the word!

[^1]: I actually really like Manulife's [live chat](https://www.manulife.ca/personal/support/contact-us.html) option,
they've been very responsive and helpful every time I've talked to them. I just wish I could access it through the
website, and not their subpar mobile app.
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