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Minor changes to guidance text and examples #51

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Aug 1, 2024
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Minor changes to guidance text and examples #51

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11 changes: 8 additions & 3 deletions docs/GWDM/1.0.form.json
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Expand Up @@ -153,7 +153,12 @@
"description": "Please provide a list of relevant and specific keywords that can improve the search engine optimisation (SEO) of your dataset as a comma separated list. Notes: Onboarding portal will suggest keywords based on title, abstract and description. We are compiling a standardised list of keywords and synonyms across datasets to make filtering easier for users.",
"guidance": "- Please provide **relevant** and **specific keywords** that can **improve the search engine optimization** of your dataset.\\n- Please **enter one keyword at a time** and click **Add New Field** to add further keywords.\\n- Text from the title is automatically included in the search, there is no need to include this in the keywords.\\n- Include words that researcher may include in their searches.",
"examples": [
"Health Data, Research, SAIL, Primary care, GP"
"Outpatient Care",
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"Socioeconomic Deprivation",
"Infant Morbidity",
"Learning disability",
"Primary Care Prescription",
"Accident and Emergency Admissions"
],
"is_list": false,
"is_optional": true,
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"required": false,
"title": "Follow-up",
"description": "If known, what is the typical time span that a patient appears in the dataset (follow up period). In a prospective cohort study, after baseline information is collected, participants are followed \u201clongitudinally\u201d i.e. new information is collected about them for a period of time afterward. This is known as the \u201cfollow up period\u201d. What is the typical time span of follow up, e.g. 1 year, 5 years? If there are multiple cohorts in the dataset with varying follow up periods, please provide the longest follow up period.",
"guidance": "If known, please indicate the typical time span that a patient appears in the dataset (follow up period).\\n-**0 - 6 MONTHS**: Data typically available for a patient over a 0-6 month period.\\n-**6 - 12 MONTHS**: Data typically available for a patient over a 6-12 month period.\\n-**1 - 10 YEARS**: Data typically available for a patient over a 1-10 year period.\\n-**> 10 YEARS**: Data typically available for a patient for over a 10 year period.\\n-**CONTINUOUS**: .......... \\n-**UNKNOWN**: Timespan is Unknown.\\n-**OTHER**: Data available for a patient over another time period.",
"guidance": "If known, please indicate the typical time span that a patient appears in the dataset (follow up period).\\n-**0 - 6 MONTHS**: Data typically available for a patient over a 0-6 month period.\\n-**6 - 12 MONTHS**: Data typically available for a patient over a 6-12 month period.\\n-**1 - 10 YEARS**: Data typically available for a patient over a 1-10 year period.\\n-**> 10 YEARS**: Data typically available for a patient for over a 10 year period.\\n-**CONTINUOUS**: Data for patients is being regularly added to and updated.\\n-**UNKNOWN**: Timespan is Unknown.\\n-**OTHER**: Data available for a patient over another time period.",
"examples": null,
"is_list": false,
"is_optional": true,
Expand Down Expand Up @@ -346,7 +351,7 @@
"required": false,
"title": "Purpose of dataset collection",
"description": "Please indicate the purpose(s) that the dataset was collected.",
"guidance": "- **Research cohort**: Data collected for a defined group of people.\\n- **Study**: Data collected for a specific research study.\\n- **Disease registry**: Data collected as part of a disease registry.\\n- **Trial**: Data collected for as part of a clinical trial.\\n- **Care**: Data collected as part of routine clinical care.\\n- **Audit**: Data collected as part of an audit programme.\\n- **Administrative**: Data collected for administrative and management information purposes.\\n- **Financial**: Data collected either for payments or for billing.\\n- **Statutory**: ...........\\n- **Other**: Data collected for other purpose.",
"guidance": "- **Research cohort**: Data collected for a defined group of people.\\n- **Study**: Data collected for a specific research study.\\n- **Disease registry**: Data collected as part of a disease registry.\\n- **Trial**: Data collected for as part of a clinical trial.\\n- **Care**: Data collected as part of routine clinical care.\\n- **Audit**: Data collected as part of an audit programme.\\n- **Administrative**: Data collected for administrative and management information purposes.\\n- **Financial**: Data collected either for payments or for billing.\\n- **Statutory**: Data collected in compliance with statutory requirements.\\n- **Other**: Data collected for other purpose.",
"examples": null,
"is_list": false,
"is_optional": true,
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19 changes: 12 additions & 7 deletions docs/GWDM/1.0.md
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Expand Up @@ -159,7 +159,12 @@ Please provide a list of relevant and specific keywords that can improve the sea

Examples:

* Health Data, Research, SAIL, Primary care, GP
* Outpatient Care
* Socioeconomic Deprivation
* Infant Morbidity
* Learning disability
* Primary Care Prescription
* Accident and Emergency Admissions


### controlledKeywords
Expand Down Expand Up @@ -293,9 +298,9 @@ Please indicate if the dataset is representative of the patient pathway and any

If known, what is the typical time span that a patient appears in the dataset (follow up period). In a prospective cohort study, after baseline information is collected, participants are followed “longitudinally” i.e. new information is collected about them for a period of time afterward. This is known as the “follow up period”. What is the typical time span of follow up, e.g. 1 year, 5 years? If there are multiple cohorts in the dataset with varying follow up periods, please provide the longest follow up period.

| title | guidance | is_list | required | type |
|:----------|:----------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:---------------------------------------------------------------------------------------------------------------------|
| Follow-up | If known, please indicate the typical time span that a patient appears in the dataset (follow up period).<br>-**0 - 6 MONTHS**: Data typically available for a patient over a 0-6 month period.<br>-**6 - 12 MONTHS**: Data typically available for a patient over a 6-12 month period.<br>-**1 - 10 YEARS**: Data typically available for a patient over a 1-10 year period.<br>-**> 10 YEARS**: Data typically available for a patient for over a 10 year period.<br>-**CONTINUOUS**: .......... <br>-**UNKNOWN**: Timespan is Unknown.<br>-**OTHER**: Data available for a patient over another time period. | False | False | ["Followup['0 - 6 MONTHS','6 - 12 MONTHS','1 - 10 YEARS','> 10 YEARS','UNKNOWN','CONTINUOUS','OTHER',null]", 'null'] |
| title | guidance | is_list | required | type |
|:----------|:---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:---------------------------------------------------------------------------------------------------------------------|
| Follow-up | If known, please indicate the typical time span that a patient appears in the dataset (follow up period).<br>-**0 - 6 MONTHS**: Data typically available for a patient over a 0-6 month period.<br>-**6 - 12 MONTHS**: Data typically available for a patient over a 6-12 month period.<br>-**1 - 10 YEARS**: Data typically available for a patient over a 1-10 year period.<br>-**> 10 YEARS**: Data typically available for a patient for over a 10 year period.<br>-**CONTINUOUS**: Data for patients is being regularly added to and updated.<br>-**UNKNOWN**: Timespan is Unknown.<br>-**OTHER**: Data available for a patient over another time period. | False | False | ["Followup['0 - 6 MONTHS','6 - 12 MONTHS','1 - 10 YEARS','> 10 YEARS','UNKNOWN','CONTINUOUS','OTHER',null]", 'null'] |



Expand Down Expand Up @@ -335,9 +340,9 @@ None

Please indicate the purpose(s) that the dataset was collected.

| title | guidance | is_list | required | type |
|:------------------------------|:-------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:----------------------------------------------------------------------------------------------------------|
| Purpose of dataset collection | - **Research cohort**: Data collected for a defined group of people.<br>- **Study**: Data collected for a specific research study.<br>- **Disease registry**: Data collected as part of a disease registry.<br>- **Trial**: Data collected for as part of a clinical trial.<br>- **Care**: Data collected as part of routine clinical care.<br>- **Audit**: Data collected as part of an audit programme.<br>- **Administrative**: Data collected for administrative and management information purposes.<br>- **Financial**: Data collected either for payments or for billing.<br>- **Statutory**: ...........<br>- **Other**: Data collected for other purpose. | False | False | ["CommaSeparatedValues[{'anyOf': [{'pattern': '([^,]+)', 'type': 'string'}, {'type': 'null'}]}]", 'null'] |
| title | guidance | is_list | required | type |
|:------------------------------|:-----------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------|:----------|:-----------|:----------------------------------------------------------------------------------------------------------|
| Purpose of dataset collection | - **Research cohort**: Data collected for a defined group of people.<br>- **Study**: Data collected for a specific research study.<br>- **Disease registry**: Data collected as part of a disease registry.<br>- **Trial**: Data collected for as part of a clinical trial.<br>- **Care**: Data collected as part of routine clinical care.<br>- **Audit**: Data collected as part of an audit programme.<br>- **Administrative**: Data collected for administrative and management information purposes.<br>- **Financial**: Data collected either for payments or for billing.<br>- **Statutory**: Data collected in compliance with statutory requirements.<br>- **Other**: Data collected for other purpose. | False | False | ["CommaSeparatedValues[{'anyOf': [{'pattern': '([^,]+)', 'type': 'string'}, {'type': 'null'}]}]", 'null'] |



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